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Aged Care

Start here: Taking the next step through the aged care jungle

Australia’s aged care system can feel like a maze of forms and wait times. Let’s break it down into what you can do right now.

The short version

  • We’re all at different stages of the process
  • Nearly everyone finds this tricky to navigate
  • There’s always a next step you can take

In a hurry? Skip to what to do this week

No one sends you a letter when Mum gets old. Not a card, not a Post-It. Nothing.

There’s no, Dear Helen, heard your mum’s turning 80 and thought you could use this info pack. Yours sincerely, the government.

There’s just the realisation you’ve gone from being cared for to doing the care, and you forgot to pause to learn how aged care works.

To paraphrase the great John Green, your Mum gets old the way she falls asleep: slowly, and then all at once. A bung hip. A forgotten word. And now suddenly you’re knee-deep in forms and red tape, and no one has even delivered a fruit basket to apologise for how diabolically complex the Australian system is.

You’re probably reading this late at night. Worry is keeping you awake. You’re on your phone typing things like WHAT IS MY AGED CARE? and WHAT’S AN IAT? All ChatGPT can do is apologise because it doesn’t understand how it works either.

The rest of the house is quiet. It feels like you’re the only person in the world trying to figure this out.

You don’t have to get it exactly right. But you do have to start.

Something’s just happened

A fall, a hospital admission, a diagnosis, a decision. For many people, this is the catalyst for looking into aged care. Unfortunately, “the most stressful moments of my life” aren’t always the best environment for making complicated and confusing decisions.

Where to next?

Step one: deep breath. Step two: My Aged Care.

The Australian government subsidises in-home and residential care for eligible people, and My Aged Care is the body that coordinates it all. They’re the people who assess what your parent needs and how much money they should receive.

All government-funded care starts with My Aged Care. Visit the website or call 1800 200 422 (hope you like hold music).

Nothing’s happened but you’re worried

This is the best place to be. You’re trying to figure it out before it becomes urgent, which means less strain later.

Where to next?

My Aged Care: This is the entry point for all government-funded care, and despite what the website says, you can start the process before you need it. Assessments can be done for any eligible person, and they (and/or you) can choose whether to accept or decline support if it’s offered. Visit the website or call 1800 200 422.

You’ve been assessed and you’re waiting

So far all you have is a letter and increasingly short patience.

Where to next?

This part does take time. Latest reports put the national median wait from application to starting Support at Home services at 297 days, and in some parts of the country it can be 11-12 months. These figures change depending on the priority category (“urgent” is a shorter wait; “standard” is the longest). If things have got worse in the meantime, you can ask My Aged Care to reassess.

The good news is, if you've already been assessed, some of this wait time is already behind you.

If you're struggling with the wait to start services, your other options include:

  • Commonwealth Home Support Program: Entry level support only, but it can be accessed before your funding comes through.
  • Interim funding: If wait times blow out, you may be assigned 60% of your level classification, so you can get started without waiting for the full amount. It's worth knowing this isn't backdated - you never get the other 40% from this time period. Interim funding also doesn't apply to End-of-Life or Restorative Care.
  • Using what turns up: Funding allocation is per service, so you don’t have to wait for the whole lot. Start each one as it comes through.
  • Paying privately: Fully out of your pocket. Not government regulated. It’s a last resort you’re allowed to feel angry about.

Services have started but they’re stressful, too

Hallelujah, people are coming to help! But maybe it’s not what you expected – missed visits, confusing bills and mismatched carers are all common.

Where to next?

The Statement of Rights says you have the right to raise issues without fear of being punished or treated unfairly.

My Aged Care advises discussing any issues with your provider first. If you’re not satisfied, you can take it to the Aged Care Quality and Safety Commission by calling 1800 951 822. That complaint can also be anonymous or confidential.

The Older Persons Advocacy Network (known as OPAN) offers free, independent help – they can even make the complaint with you. If you feel stuck, give them a call on 1800 700 600.

You’re wrecked and need some help for you, not someone else

Putting others first doesn’t leave much for you. If it’s time to take a break, there are things that will help – and feeling guilty isn’t one of them.

Where to next?

Respite care is when someone else takes care of your parent so you can have a break, and it’s a critical service based on real need. No one can give and give indefinitely.

There are a few options:

  • Planned respite: As part of a Carer Gateway tailored support package, you might be able to get it for free. Your local Carer Gateway provider can help you with the first step; call them on 1800 422 737.
  • Emergency respite: For stuff you can’t plan, like illness or injury. This is also a Carer Gateway service, so the same number applies.
  • Support at Home: If you’ve been approved, your parent’s budget can be put towards respite under the Independence category (you’ll also have to make a contribution).

The practical bitWhat to do this week

  1. For better or worse, most of these scenarios start in the same place: My Aged Care.
  2. Call them on 1800 200 422.
  3. Your parent can do it, or you can do it on their behalf with their consent.

Common questions

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